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Here is a movie of Eden in ICU. I was able to hold her hand as the nurses did some more tests and cleaned out all the tubes.
The head dress is simply to hold the nose tubes in place. The nose tubes push a little air down into her lungs to keep them partially expanded. This makes it easier for her to breathe.
It looks like she is struggling to breathe, but she is doing fine. Her lungs have not yet fully developed and her abdominal muscles have no fat covering them, so it looks like she is struggling. It was good to hold her hand.
As the nurses did their work, I held Eden's hand. She would squeeze my hand and pull telling me, "please help." It broke my heart to see her in any discomfort, but I knew it was for her own good and I felt a deep sense of obligation to protect her.
I can now understand Psalm 3 a little more as God wants us to depend more on Him. He must love us, want to care for us and yet allows bad things to happen for our good.
-Daddy
This blog is to document God's wonderful creation through us.
I will praise You, O LORD, with my whole heart; I will tell of all Your marvelous works. (Ps 9:1)
About Eden
Eden is a miracle. (See details below)
From conception to birth, she has shown that "With God nothing will be impossible." (Luke 1:37)
After 19 years of marriage and no kids, God surprised us with little Eden.
From conception to birth, she has shown that "With God nothing will be impossible." (Luke 1:37)
After 19 years of marriage and no kids, God surprised us with little Eden.
Closeup
Prayer Requests
Please pray for:
| * | Health for Tina |
| * | Eden's memory to be a testimony for Jesus. |
| * | Strength for Eden's mommy and daddy. |
Psalm 139:13-14
For You formed my inward parts; You covered me in my mother's womb. I will praise You, for I am fearfully and wonderfully made; marvelous are Your works, and that my soul knows very well.
Birth Countdown
July 3, 2009 at 2:20pm
Current Status
Eden Lanay Graves
Born July 3rd, 2009 at 2:20pm
Sex: Girl (of course)
Weight: 1.38kg (3.06 lbs)
Length: 42cm (16.5 in)
Born at 33 Weeks - 4 Days
Diagnosed with Trisomy 18 (Edward's Syndrome)
Went to heaven: July 10th, 2009 at 9:05pm
Born July 3rd, 2009 at 2:20pm
Sex: Girl (of course)
Weight: 1.38kg (3.06 lbs)
Length: 42cm (16.5 in)
Born at 33 Weeks - 4 Days
Diagnosed with Trisomy 18 (Edward's Syndrome)
Went to heaven: July 10th, 2009 at 9:05pm
Eden's Time on Earth
7 days, 6 hrs, 45 min
Miracles of Eden
Here are a few of Eden's Miracles:
Ultimately, the doctors were right in the diagnosis, but the percentage of those who make it as far as Eden is minute. We are so happy we continued the pregnancy! It was worth it all for the seven days we had with her.
| * | We became pregnant at all. After 19 years of marriage and seemingly unable to have kids. |
| * | 12 Weeks. Her ultrasounds and Tina's blood tests showed Eden would not make it to 19 weeks. |
| * | 19 Weeks. The doctors were shocked that she was still around and the ultrasounds looked 'normal' |
| * | 23, 25, 29 Weeks. Doctors continued to be shocked. They told us we should expect to lose her soon. |
| * | 33 Weeks. Doctors decided to deliver her early but thought she would not survive the birth. |
| * | July 3rd. Eden did survive and lived for seven days. |
| * | She stole the hearts of Mom & Dad without doing much of anything. |
| * | She stole the hearts of many of you whom she's never met! |
Ultimately, the doctors were right in the diagnosis, but the percentage of those who make it as far as Eden is minute. We are so happy we continued the pregnancy! It was worth it all for the seven days we had with her.
4 comments:
Us over here on the other side of the world in the U.S. are appreciative of the technology and John's skill that allow us to see & marvel at those little tiny fingers grasping one big one that is offered out of Love! Yea Eden! You keep them lungs a-pumpin'!
//Denver
WOW!!! Thank you so much for sharing all of this with us. What a precious bonding moment! It doesn't matter how old she is, she will always need her Daddy!
Love you bro!
Aunt Linda
She's a fighter! Good for little Eden!
John, she's already got YOU wrapped around her little finger! How great is that!!
Thanks for keeping us in the loop!
Big hugs to all,
Frannie
Oh my GOD! You know that birth is a miracle in and of itself, but Eden is the epitomy of God's love and grace. Watching/listening and reading your two testimonys is enough to make the devil himself come around and be born again. I love you both so much and my little niece is a miracle. Of course Christina asked why her name wasn't Eden Christina! HA! HA!
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